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Lessons Learned from a TBI

Some self-care tips to shield your psyche

in Caregiver, Editor, Life Lessons, Mental Health, Self Care
December 10, 2021
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Lessons Learned from a TBI

By Amy Zellmer, Editor-in-chief

The approaching holidays can be a season of overwhelming activities, exhaustion, and burn-out for many of us. Whether it’s shopping for gifts, planning dinners with family, or traveling to loved-ones’ homes for get-togethers, the experiences can all be too much at times.

Here are a few simple tips to help you navigate this challenging, yet joyous time of year:

  1. Keep hydrated. The brain functions best when it is fully hydrated. When you are out shopping, you may become dehydrated rather quickly. You can combat this by always having a water bottle with you and refilling it often. As tempting as it is, drinking alcohol and caffeine will also cause you to get dehydrated, so it is best to avoid those types of drinks when you know you are going to be faced with overstimulation.
  2. Keep additional stimulation to a min Decrease the amount of stimulation in places where you have control. If you know you’re headed to the mall or crowded restaurant, don’t watch television before heading out or listen to the radio on the way. Take your sunglasses and earplugs along, and use them if necessary.
  3. Get additional rest. While this one seems obvious, the hustle and bustle of the holiday season sometimes makes finding time to rest difficult. Rest is critical to help our brain recover from overstimulation. Take a nap before or after your big outings, and do your best to get a good night’s sleep each night.
  4. Take shorter trips. If you have a lot to get done, you may want to consider breaking your errands into smaller trips. I find it easier to do one errand each day, rather than trying to cram five things into one outing. Your necessary tasks may take longer to do, but your brain will thank you.
  5. Make lists. I am the queen of sticky notes and shopping lists. Why add additional stress to the situation by going shopping without a clear list of where you need to go and what you need to get? Even with a list, you may still feel overwhelmed and out-of-sorts.
  6. Ask for help. This tip can be hard to do, but sometimes you need to ask for help—whether it’s asking for someone to drive you somewhere, carry your bags for you, or even run an errand for you. Know when you’ve reached your limits (or, preferably BEFORE you’ve reached your limits), and ask for help.
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  • It was such a pleasure to keynote at the @biaofms NeuroTrauma Symposium last Friday. What an amazing group of professionals and survivors. I found some new resources I didn’t even know existed out there!! 

#bia #braininjury #concussion #tbi #pcs #keynote #brainhealth #neuroplasticity
  • Neuro fatigue is beyond tired, it’s when you’re brain says “I’ve had enough” and shuts down everything. It often a sneaks up on you when you least expect it, making it hard to manage. 

If you’ve never experienced it, it’s truly hard to understand. But please believe us when we tell you we’re done and need to rest. And that rest may look different for everyone. Some may need a nap. Some may just need a quiet space. There’s no right or wrong way to rest. 

#braininjury #tbi #pcs #concussion #braininjuryawareness #braininjuryawarenessmonth #TBIsurvivor
  • A traumatic brain injury is the ultimate “invisible injury” as no one can see what’s happening inside your brain. Even imaging doesn’t show a TBI (unless you have bleeding or severe trauma). It’s impossible to explain to others, and even doctors don’t take us seriously or know how to help us. 

It is incredibly frustrating to go through life being told “there’s nothing we can do. You’ll just have to give it more time and see what happens” and even more frustrating when you find out that there are doctors out there who truly DO know how to help us!  Like @integratedbraincenters 

#braininjury #tbi #pcs #concussion #functionalneurology #braininjuryawareness
  • I remember how I would literally need to lay down after taking a shower because it was so exhausting. And something like going to the grocery store and bringing them in and putting them away would require me to do nothing else for the rest of the day. It was a one-chore kind of activity. 

These are normal, every day things we take for granted before brain injury, and afterwards they require soooo much energy and effort. It’s truly hard for someone who hasn’t experienced a brain injury to understand. 💚

#braininjury #tbi #concussion #pcs #braininjuryawareness #TBIsurvivor
  • You totally got this!! 
Is it gonna be easy? Nope. 
Is it gonna be worth it? Absolutely! 

#tbi #braininjury #concussion #pcs #TBIrecovery #TBIsurvivor
  • The Chair Yoga Pocket Guide is trending on Kickstarter! We’re over half-way to our goal! Can you help us get there by pre-ordering an autographed copy of the book?? 

LINK IN BIO 

https://www.kickstarter.com/projects/brainhealthmag/the-chair-yoga-pocket-guide

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  • I remember folks would talk to me and my brain would take forever to process what they were saying. They would be into the next subject and I’d still be trying to decipher their first sentence. It was frustrating and exhausting. 

Friends would tell me to “try harder” and concentrate. But that’s not how it works with brain injury. 

It’s like if you drop your laptop and scramble it’s processor. 

#braininjury #concussion #tbi #pcs #braininjuryawareness #braininjuryawarenessmonth #TBIsurvivor
  • #Repost @integratedbraincenters
Recovery as defined in the dictionary is a return to a normal state of health, mind, or strength. 

Missing from this definition is that recovery is a continuum. We often hear in recovery post surgery that a patient is a percent recovered (Sue is 80% recovered post hip replacement) demonstrating that recovery is not an all or nothing situation but is rather a spectrum. 

Not everyone will make a 100% recovery but most people can move forward in their recovery in some way, even if it is only 10% or 70%. 

To say that recovery is not possible in any capacity is probably untrue. The more severe the injury the more likely you will never be the same person you were prior, but that does not mean that you can’t get back to doing the things you love and contribute to your family and community.

#beaininjury #concussion #tbi #pcs #neuroplasticity #resilience #resiliency #TBIsurvivor
  • No two brain injuries are the same, therefore, no two recoveries are the same. Don’t compare yours against someone else’s, as you never know what they’ve already gone through. 

Focus on YOU and your recovery. What could you try differently? What should you maybe give up? I personally gave up alcohol and gluten and that was huge for me and my inflammation. 

#braininjury #concussion #tbi #pcs #neuroplasticity #functionalneurology #funcneuro #neuronerd

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